RETINOBLASTOMA MIDWEST

Books:

My Fake Eye: The Story of My Prosthesis

 Information on how to order can be found at The Institute For Families of Blind Children

Lost Eye

Coping with Monocular Vision after Enucleation or Eye Loss from Cancer, Accident, or Disease

By Jay Adkisson

 A Singular View:  The Art of Seeing with One Eye

by Frank Brady

 Perfect Vision:  A Mother’s Experience with Childhood Cancer

 by Sharon Higgins Brunner

Beyond the Red Door

by Janet Shaw

Products:  (These are products that over the years I have found to work for us.  Every child is different but we have been through a lot of trial/error which still continues.  Below are some of our favorite things.)

Coppertone Water Babies Pure & Simple Sunscreen 50 SPF -tear free, oil, fragrance & dye free, Zinc Oxide 14.5% 

Neutrogena Pure & Free Baby Sunblock Stick SPF 60+ -Titanium Dioxide 6%, Zinc Oxide 4.7% 

OCuSOFT Lid Scrub Eyelid Cleanser pads (great for a goopy prosthesis!)

Ocu-Glide Prosthetic Eye Lubricant (can only be used on the prosthesis but is the best on the market in my opinion)

Solo Bambini children’s eyewear-light one piece (no screws or metal parts) glasses for children in great colors! 

If you have a favorite product that works for you please send me an email with the information at lori@rbmw.org.