Comments for RETINOBLASTOMA MIDWEST http://rbmw.org An online resource for families with retinoblastoma Thu, 09 Dec 2010 18:29:14 +0000 hourly 1 http://wordpress.com/ Comment on Our Rb Stories by loriannegraham http://rbmw.org/our-rb-stories/#comment-298 Thu, 09 Dec 2010 18:29:14 +0000 http://rbmw.org/?page_id=50#comment-298 I don’t believe there is a group in Michigan though there are many families! Glad to have you!!

]]> Comment on Resources by Molly Schmid http://rbmw.org/resources/#comment-297 Thu, 09 Dec 2010 01:53:01 +0000 http://rbmw.org/?page_id=29#comment-297 me too!

]]> Comment on Our Rb Stories by Molly Schmid http://rbmw.org/our-rb-stories/#comment-296 Thu, 09 Dec 2010 01:52:16 +0000 http://rbmw.org/?page_id=50#comment-296 Hey my daughter has RB and had her eye removed about 2 months ago. We are undergoing genetic testing right now. Is there a RB group in Michigan or is this the closest one?
Thanks!

]]> Comment on Contact by Monika Rivera http://rbmw.org/contact/#comment-165 Mon, 12 Apr 2010 23:37:54 +0000 http://rbmw.org/?page_id=19#comment-165 I am a survivor of retinoblastoma, in my case I do not have a prosthesis, I am Mexican and live in Mexico City, my goal is to inform the blog on the diagnosis, process, consequences of retinoblastoma especially want to find and inform those who have this problem in Mexico on the recovery and social integration after retinoblastoma, could recommend or send texts or reference links to psychosocial care for survivors of retinoblatoma please? My blog is in Spanish and my English is not very good but use a translator. I look forward to your help, thanks.

]]> Comment on Welcome to RbMW! by Robin Ratledge http://rbmw.org/2009/06/23/hello-world/#comment-164 Sun, 04 Apr 2010 00:33:11 +0000 #comment-164 Hi Everyone! We live in Chicago and have a daughter Reece 2 yrs old with Bi-lat Retinoblastoma. Glad to have found this site!
Thank You All

]]> Comment on About us by Paula Wheeler http://rbmw.org/about/#comment-34 Wed, 30 Dec 2009 01:25:24 +0000 #comment-34 Hi,
I am the mother of a 19-year-old survivor of bilaterial retinoblastoma. My son was diagnosed at the age of 15 months in 1991. His right eye was eneucleated and he received radiation treatment for his left eye (no chemo), which was the common treatment at that time. He is our only child. We were living in Baltimore at the time, so he was treated at the Wilmer Eye Institute/Johns Hopkins. We now live in Clive, IA and he is in his second year of college at St. Olaf in MN.
My husband and I have walked in your shoes and I feel blessed to be able to tell you that there is light at the end of the tunnel you are now traveling down. I would be happy to share my experiences and ‘wisdom’ with you!
Happy New Year,
Paula

]]> Comment on CANCELLED**2nd RbMW Family Event!**CANCELLED by Greg Waters http://rbmw.org/2009/07/29/2nd-rbmw-family-event/#comment-33 Thu, 17 Dec 2009 22:09:06 +0000 http://rbmw.org/?p=57#comment-33 Hey Lori, let’s try it again next year. Daniel will be a bit older and might like it. Love to meet y’all. We had 4 families get together down here for the Friends of Kids with Cancer Christmas Party.

]]> Comment on First Rb Event Update by Greg Waters http://rbmw.org/2009/07/17/first-rb-event-update/#comment-32 Thu, 17 Dec 2009 22:07:45 +0000 http://rbmw.org/?p=48#comment-32 It was good to see the St. Louis peeps at the Friends of Kids with Cancer Christmas Party!

]]> Comment on Resources by steve richmond http://rbmw.org/resources/#comment-21 Fri, 18 Sep 2009 01:07:35 +0000 http://rbmw.org/?page_id=29#comment-21 looking for a group in Michigan

]]> Comment on CANCELLED**2nd RbMW Family Event!**CANCELLED by loriannegraham http://rbmw.org/2009/07/29/2nd-rbmw-family-event/#comment-20 Mon, 07 Sep 2009 14:54:11 +0000 http://rbmw.org/?p=57#comment-20 This event has been cancelled due to lack of attendance.

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